Children's Cancer Recovery

CCRF Blog

Essential Oils: 101

Good morning, Good Night, and/or All Points in Between (depending on when you are taking the time to read this….)

Welcome to the inaugural CCRF "Back to the Essentials" Blog - This begins what I hope will be a long relationship together where I will be addressing all sorts of topics, tips, and tricks in the hopes to detoxify your body, your home, your life. I recently had the great pleasure of meeting the new CCRF Executive Director in a class that I was teaching, learning about the phenomenal things that CCRF does, wanting to find a way to volunteer, and realizing that they were located right in my backyard. So long serendipitous story short…voila!

Now bear with me, I must confess up front – I am not a doctor by any stretch of the imagination. My Master’s Degree is in Urban Affairs and Public Policy, and as a Historic Preservation Specialist, I deal with the building environment every day. But it’s not such a stretch from architectural historian to wellness advocate, for if we don’t take care of ourselves, “preserve” ourselves if you will, how can we then take care of each other and the world that surrounds us? In the same vein, we can learn so much from the past and those who came before us - who lived centuries, millennia - before us.

For the first time in history, the life expectancy of our kids is lower than our own; and this is true ONLY in the United States (http://ow.ly/hwau30i5ATO). Politics aside, the statistics are startling when you compare just how the US ranks in overall healthcare as well as the toxins we allow into items that we use EVERYDAY. To put it plainly, we are exposed to more chemicals and toxins in one day than our grandparents were in their lifetimes. To some this may not be newsworthy but to all it should be, especially when you realize that such exposure affects everything from our energy levels, to our weight, from our emotional wellbeing, to yes, our overall life expectancy.  To me, as a parent of two very young boys (as well as a herd of various pets and farm animals) that is horrifying and unacceptable.

And it’s to that point where my journey began. I have a desire to empower myself and my own family to proactively take charge of their own health and environment – controlling what they CAN control – turning to natural solutions first, asking questions, sharing with their friends regardless of what they think they do or do not know. My desire has grown and morphed – through phenomenal teachers, medical professionals, and an incredible support network—from a personal revelation to a lifestyle revolution that I just want to share with everyone – including you.

The intent of these monthly blogs is not to alarm you but ideally to motivate you to do your own research, empower you to know there are alternatives, and inspire you to make changes. My story is not atypical or even blog worthy but trust me, we all have (or will have) our Eureka moment - Come find yours.

RSVP to the Essential Oils: 101 Class here.

Emma

 

YouTube: https://www.youtube.com/watch?v=M7btq8eYavY
DoTerra: www.mydoterra.com/emmadiehl
Email: eyo81@hotmail.com

 

About Children's Cancer Recovery Foundation

Headquartered in New Oxford, PA, the Children's Cancer Recovery Foundation supports children under 18 and their families facing the hardships of cancer. The foundation performs acts of care and kindness through the following programs: Bear-Able Gifts (largest distributor of gifts to children with cancer in the U.S.); the Helping Hands Fund (provides emergency financial assistance to families); and Camp Scholarships (allows children in remission to reconnect with activities they love). With a national pediatric hospital partner network of 215+ locations, the foundation directly helps more than 16,000 children affected by cancer and their families every year. Please visit www.ChildrensCancerRecovery.org.

CCRF Wraps Up 2017 Toy Shipments

New Oxford, PA — November 27, 2017 —The continued generosity of individuals and corporations across the United States has allowed the Children’s Cancer Recovery Foundation’s (CCRF) Bear-Able Gift Program to put smiles on the faces of children living with cancer. Those smiles help to make the life of a child with cancer more bearable and hopeful while receiving treatment.

During the 4th quarter, the Bear-Able Gift Program delivered 5,028 toys and gifts to 26 hospitals across the country to help brighten the lives of 2,465 children living with cancer. Volunteers from GFWC Mechanicsburg and Girl Scout Troop 80093 assisted the CCRF staff in packing and shipping each Bear-Able Gift!

This most recent toy shipment wrapped up the 2017 Bear-Able Gifts toy shipments. With the help of volunteers, CCRF sent a total of 28,333 toys to 10,685 children in 2017!

The Bear-Able Gift Program distributes items such as games, toys, crayons, coloring books, video games, puzzles, books and teddy bears — all kinds of things that make children smile — to hospitals and oncology centers across the country. The program makes CCRF the largest supplier of gifts to children in North America who have cancer. It relies solely on donations of new and unwrapped toys.

There are a number of ways in which individuals and businesses can help support CCRF’s Bear-Able Gift Program; they include sponsoring a toy drive or raising or donating funds. To sponsor your own toy drive, visit www.childrenscancerrecovery.org/get-involved/sponsor-a-toy-drive. If you would like to donate to CCRF's Bear-Able Gifts Program, please visit www.give-ccrf.networkforgood.com. For more information contact us at childrens@cancerrecovery.org

Connor’s Story

Our story begins like so many others, just a normal day, December 5th my boys playing together when Connor starts to say his stomach hurts. He lays down and so begins two days of his stomach hurting. A trip to the doctor and two trips to the ER. All doctors seemed to be confident it wasn’t his appendix, which was also my concern. On December 7th around 11 PM he woke up screaming, “It hurts so bad mommy.” I quickly rushed him to the ER for the 2nd time. This time a wonderful doctor listened to me and around 3 in the morning he had an IV in and had a CT scan done. A few hours later she came in to tell me they found a large mass on his liver and an ambulance was on its way to rush us to Hershey Medical Center. My heart still sinks when I think of that moment. I held in my crying as much as possible because he was watching me, so sweet and tired and in pain wondering why I was crying. I told him I was just tired. My husband rushed to see us before we left for Hershey, my mom rushed down from Clarion. Family friends helped with our other boys.

We arrived at Hershey and no time was wasted. He had a second CT scan. No less than 8 surgeons, oncologists, and med students surrounded us to tell us he had a tumor on his liver and would be having a 7-hour surgery the next day. One of my brothers arrived and we spent the day playing with Connor trying to not upset him. I remember clearly that we didn’t have anything for Connor because we left from the hospital so they gave him the Spider Man jammies. At 11:00 that night him and I sitting in the quiet hospital room and he looks at me and whispers, “Mommy when I grow up I am going to be Spider Man.” I just remember holding back my tears and thinking, yes, you have to grow up.

The next day he had surgery. Seven long hours and he would spend the next 10 days in the hospital. You don’t know the anguish of seeing tubes sticking out of your child, seeing his perfect belly, now with a permanent scar.

Connor recovered from this surgery while we waited for the pathology reports to determine if he would need chemotherapy. They came back, Hepatoblastoma, yes he would need chemo. New Year’s Eve he had surgery to place a port in his chest and began chemotherapy. Four cycles of chemo over the next few months would lead to hair loss and permanent hearing loss. He now wears hearing aids. Through it all the outpouring of support from communities and charities we had never heard of before helped to lighten our load and let us focus on his health.

I am happy to report today Connor is 2 and ½ years cancer free!

Childhood Cancer Awareness Month
September is Childhood Cancer Awareness Month. Cancer is the leading disease killer among children in the United States with 1 in 5 children diagnosed not surviving. Despite these statistics, the FDA has approved only three new cancer treatments for children in the last 20 years. In order to have a world without childhood cancer, there needs to be more funding for research. More research will ensure better treatments for children fighting cancer and fewer children having to battle this terrible disease each year.

6,000 Toys Sent to Children in the Hospital

New Oxford, PA — August 31, 2017 —The continued generosity of individuals and corporations across the United States has allowed the Children’s Cancer Recovery Foundation’s (CCRF) Bear-Able Gift Program, to put smiles on the faces of children living with cancer. Those smiles help to make the life of a child with cancer more bearable and hopeful while receiving treatment.

During the 3rd quarter, the Bear-Able Gift Program delivered 6,499 toys and gifts to 32 hospitals across the country to help brighten the lives of 2,460 children living with cancer. Volunteers from the Visiting Nurse Association of Hanover and  GFWC Mechanicsburg assisted the CCRF staff in packing and shipping each Bear-Able Gift!

The Bear-Able Gift Program distributes items such as games, toys, crayons, coloring books, video games, puzzles, books and teddy bears — all kinds of things that make children smile — to hospitals and oncology centers across the country. The program makes CCRF the largest supplier of gifts to children in North America who have cancer. It relies solely on donations of new and unwrapped toys.

There are a number of ways in which individuals and businesses can help support CCRF’s Bear-Able Gift Program; they include sponsoring a toy drive or raising or donating funds. For more information, please visit www.childrenscancerrecovery.org/programs/bearable-gifts/, or contact us at childrens@cancerrecovery.org

 

Verity’s Story

Child Name: Verity
Diagnosis: Medulloblastoma
State: KY
Program: Helping Hands Fund
Date Helped: October 2016

1. Cancer. When did this word enter your life?
July 25, 2016

2. How has cancer affected your family in a positive and/or negative way?
Positive – We have seen humanity’s greatest qualities: love, courage, and compassion.
Negative – Suffering and sickness are hard to see/endure. Family separation, for a time, was really hard.

3. What has been the biggest challenge or struggle during your child’s treatment?
The first and greatest struggle as parents was deciding on the best treatment option and center. For our child, nutrition has been the greatest. Vomiting, dehydration, and fatigue are all culprits. A G-tube has really helped.

4. How have you and your family stayed mentally and emotionally healthy?
By receiving support from family and friends, we know that Verity is being prayed for, is loved, and not alone. Even organizations, like Children’s Cancer Recovery Foundation, that do not even know us personally, show care and concern. Our faith has gotten us through.

5. What has brought the most joy or fun to your family’s life during your child’s treatment?
The simple, ordinary things in life. Being able to share our journey together, experiencing the good and the bad, is joy in and of itself. Sometimes that may be finding humor in an experience, appreciating the blessings of today, or holding each other’s hands during a hard time.

6. How was your family impacted when chosen to receive help from our Helping Hands Fund?
We were relieved of some of our lodging costs during our stay in Boston.

7. How did you hear about Children’s Cancer Recovery Foundation?
Social worker at MGH.